 Nostalgia, DVDs, old movies, television, OTR, fandom, good news and bad, picks, pans, cute budgie stories, cute terrier stories, and anything else I can think of. Contact me at theyoungfamily (at) earthlink (dot) net . . . . . . . . . .
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» Thursday, January 30, 2025
Long Day's Journey into Long Days and Longer Nights
I've been blogging much longer than I've ever been on social media, but those little dribs and drabs of posts are so much easier when you've been busy with other things, whether health chores and household duties and just wanting to write, so I was hoping I could make a resolution that I would write at least once a week in this blog and keep up with it, not just dump three to five posts at a time in a racing game of "catchup." January 2025 has punched us both in the face, but it's James that took the brunt. Back in December he started to complain about feeling irritated in the groin area. I duly examined him, both back and front, several times. He does tend to get little fungal infections where the flesh of his abdomen meets the flesh of his thighs, and we keep miconazole powder in the house for that problem. It usually clears up little skin fissures or reddened, sticky skin in two to four days. But I didn't see any signs of skin fissure down in the areas he indicated; I examined very slowly and carefully. There was no redness, no swelling, no open sores, and no pain. Since James has mobility problems, I'm the one who cleans up down there nightly, and I kept on the lookout for redness/swelling/abraded skin or open sores. He finally got on Kaiser mid-December to get an appointment to get it looked at, but of course that wouldn't be until mid-January. In the meantime we just kept racing to get him that "cement" procedure on his fractured vertebrae and arrange physical therapy afterwards and him getting to dialysis three days a week, just run, run, run to doctors' appointments and when we weren't doing that we were staying home because we were both just so damn tired. We missed Christmas dinner because dialysis two days in a row made him sick; the only nice day we had was going out to Canton on the 26th for books and pizza. On New Year's Day I notice he had a small lump on his backside under the skin, about the size of a big green olive but elongated. Again, it wasn't red, swollen, abraded, and not particularly painful, but he could feel that I was touching it. We agreed we had to mention it to Dr. Mobley. I kept checking it every night and it wasn't getting larger. On January 4, he had blood in his urine. Of course, we thought, he's got another UTI. We went to Urgent Care on Sunday the 5th. James had no signs of UTI that day—his urine was even yellow again, although with doing the intermittent catherization, it's never very clear and often had an odd smell. We were told that was common in both IC and with him having dialysis because he's on a restricted fluid intake. That was the shortest time we had ever been in Urgent Care! They did a urine test, gave him oral antibiotics rather than an IV as they almost always do, and also gave him some pain medication due to the "UTI" making him uncomfortable. I did show the doctor the olive-sized lump near his right buttock. The doctor replied that it was probably a small abscess and that the antibiotics (four big pills a day for ten days) should take care of it. We stopped for ice cream on the way home and the cashier saw my "Unapologetic Fanfic Writer" magnet on the driver's side door and since there were no other customers, yakked a minute or two about fanfic. She was a Supernatural fan and I recommended a story to her. That was the last nice thing I remember happening. To get the urine sample for the UTI test at Urgent Care, I had brought along an unwrapped catheter and lube. The doctor at UC let me take the sample after I'd washed my hands and put on gloves and used the wipes. I noticed that I had a little trouble getting the catheter in, but thought it was the angle James was sitting on the stretcher. When I went to cath him that evening, however, and when I washed him, I noticed with some dismay that his scrotum was swollen. I told him about it, and he said he had noticed some discomfort. He had dialysis the next day, and I told him the moment he was finished, we needed to head back to Urgent Care. He agreed. About two minutes later he asked me to rinse him off quick; his legs were feeling a bit wobbly. I did, he took one step out of the shower, but his left leg would not follow after his right. I tried to hold him up, but instead he slipped down, in a very painful looking crouch, with his poor crotch ending up on the doorstop on the shower compartment. I lost it completely. I was so hysterical on the phone the 911 operator had to tell me to breathe. I could barely talk without my teeth chattering and I was shaking almost too hard to hold the phone. The firemen showed up and somehow one of them got in back of James and one in front and got him out. James said he was okay and sat on the toilet and they left and he finished drying off and successfully limped into bed. About four a.m. he got up to use the toilet and his knees gave out again. The same firemen came. They got James to the end of the bed, and the head officer said, "If this happens again, he needs to go straight to the emergency room." At six a.m. (Monday, January 6) I called DaVita, who basically said that if he couldn't walk he couldn't come in for dialysis and we needed to go to ER. We slept a little more and then called Kaiser and they said the same thing. So I called for an ambulance and they had to take him out of the bedroom in a little folding chair, then got him on the chair lifts downstairs, then took him on a stretcher to the ambulance. In the meantime I uncovered Piper, put the TV on for him, made sure Tucker had food, ran him outside while the ambulance drivers took stats and set James up, then packed up some things really fast (we have an emergency room bag with plugs and stuff) and followed them to Emory St. Joseph. He was in the ER most of the day, half asleep, while I repeated what had happened several times, and finally got a room in the evening. They eventually put him on the fifth floor and started pumping him full of antibiotics. This is liable to turn into War and Peace if I let it, so suffice it to say James is still in the hospital as I write this and will be for the forseeable future. After a restless day on Tuesday, January 7, during which we watched the State viewing for President Jimmy Carter, James' situation gradually worsened. Even though he still had no fever, he started talking off his head, just complaining of pain only and saying nothing else coherent. I was told a serious infection sometimes does this, even without a fever. I could do nothing to comfort him and, indeed, at least once the hospital staff had to call me to see if I could talk him into taking his meds because he was spitting them out. On Wednesday evening, as she was cleaning James, one of the nurses discovered something disturbing on the underside of his swollen scrotum and took a photo to call the doctor, who ordered an ultrasound and a CT scan after I left. I had already been worried because I had noticed an odd smell several hours earlier. On Thursday, January 9, they transferred him from Emory St. Joseph to Emory Decatur because the Kaiser specialty urology doctor was located at the Decatur location. He was taken to Progressive Care rather than the ICU as St. Joe's had ordered, and I was at my wit's end when the nurse said she couldn't find his files. Finally about ten o'clock (at night; they had transferred hospitals right in the middle of rush hour and it had taken me an hour to go thirteen miles) the surgeon (Dr. Chen) came rushing in, demanding to the nurse why James wasn't in ICU prepping to go to the operating room because he needed surgery right away. He was pissed off that St. Joe's had not noticed what the nurse noticed when he was admitted and why they'd frittered away three days. Alice had come over earlier to put Piper to bed and give Tucker a short walk and do lights out, and I headed home just as they were taking James to the OR. I had no way to stay overnight; there wasn't even a recliner and, although I had my heart pill for the night, we were about to get snow and I wouldn't be able to get home. I was "snowbound" at home for two days from three inches and Atlanta's abysmal snow prep. I'd like to say I was industrious and took all the Christmas decorations down but all I could do for two days was cry and mope around the house. (I finally got the Christmas stuff down during the freezing rain day I had to stay home during almost two weeks later.) James was incoherent for pretty much a week and then slowly began getting his senses back. It was so bad at several points they had to restrain him because he was trying to pull his trache tube and even his dialysis ports out. He had one more OR foray while he was in ICU and had to stay on the breathing tube for two more days after his heart rate spiked and blood pressure dropped after coming back to the room. At the moment he's graduated from ICU to a step-down unit and today had another session in the OR to remove dead skin from what turned out to be Fournier's gangrene. You can look that up yourself; once was enough for me. What do you do about something the doctor tells you is "catastrophic"?
Pretty much all he can do is lie in bed and be patient and/or in pain. I can't even leave his phone and/or his tablet with him to amuse himself because his right arm is swollen from having IVs stuck in it and, about ten days ago, after I returned from that "freezing rain" day, his left arm swelled up like a stuck pig. Supposedly it's from fluid retention because he can't have a full dialysis session, but they really don't know what's happened; he had an ultrasound and a CT scan on it a week ago, and they came around to do another one today, but that was after he left for the OR (the ultrasound tech said he would come back). Someone—sometimes me, sometimes the nurse—has to feed him, and they have to turn him every two hours because he's basically sitting on his wound and there's no where else to position him. Physical therapy has come around and it's scary the way he's weakened from doing really well after the first surgery to two weeks later where he can barely move. I have "homework," too, to smooth his left arm from hand to shoulder in an attempt to "push" the fluid out. He can't even make a fist or grab with that left hand right now. I'm not sick, but the toll is...immense. It's a fifty mile drive round trip, I'm buying gas every five days, traffic is frightening, my car isn't in all that good a shape, and I'm exhausted. By the time I get home I can barely warm up or cook supper and spend a few scant hours with the fids before it's time to go to bed and start the whole rigamarole over again: gobble breakfast, feed and walk Tucker, make sure Piper is watered and fed and has the television on, and leave. Some friends have asked if they can come visit and take me to dinner. I don't know what to say because by the time I get home I'm flat out of energy. I sleep but don't sleep well; two nights ago I woke up disoriented and thinking I was in the hospital but it was all dark and James was missing and I was screaming "Where am I? Where is my husband? Why doesn't someone come when I call?" until I crawled out of bed toward the light coming around the bathroom door (from the nightlight) and realized where I was. My eyes hurt all the time and I can't rest except for the couple hours a night I lose myself in Law & Order: Criminal Intent between calling up the hospital to get a nightly report on James (and sometimes get to talk to him). And sometimes it's like he just gets to feeling better when they have to do another procedure and everything starts all over again. But he's back in the room now and not intubated and they say he's doing okay for now and he's even hungry (which he wasn't at all from the 9th to the 19th!).  » Sunday, December 29, 2024
Dialysis Blues, Lone Christmas, and Farewell to a President
 James had dialysis two days in a row this week. Since Christmas fell on a Wednesday this year, and they obviously didn't want to take the dialysis patients away from their own celebrations, they scheduled James for Monday and Tuesday dialysis. Monday went fine. I bought last minute foods at Kroger and made gravy with boneless pork ribs for Christmas Eve dinner. James watched Landman and Battlebots on his tablet.Tuesday seemed to go as well. James had dialysis. I did some last-minute grocery shopping. We had spaghetti and pork ribs and watched The Homecoming and some of Midnight Mass. We had plans with friends for Christmas which went down the drain on Wednesday morning. After making and eating breakfast and post gift opening, James suddenly got lightheaded and giddy. It happened twice. His blood pressure was something like 83 over 45. I looked it up and this often happens after consecutive dialysis sessions. So we rustled the emergency turkey out of the freezer, paired it with Yukon Gold potatoes, and a cucumber salad, and had a Christmas dinner on our own after giving James some salt and more liquid, and we both had a nap. Then we watched this year's Call the Midwife special, which was fabulous; there were several intertwined plotlines, including a tense but sweet incident involving Reggie, the young man with Down Syndrome. Before bed, it was time for The House Without a Christmas Tree. A quiet ending to a quiet day. Thursday we had a better day: James was feeling much better and we drove out to Books-a-Million and then had lunch at Brooklyn Joe's. We got a large pizza and once again brought half home. [Later: We had it as another meal several days later.] On the way home we stopped at Barnes & Noble. Early Friday morning we got a call from DaVita. They were shortstaffed and couldn't accommodate James at Bellemeade that day. They had found a seat for James either that afternoon in Hiram at three or Saturday in Douglasville at 10:15. We chose Hiram even though it was a chilly, wet day because Douglasville was just too far to drive. However, getting there at three meant James wouldn't be out any earlier than 6:30. It's only fourteen miles, but it would be in the dark. I wasn't driving back that distance in the dark. Driving the two miles to the one near the house had been bad enough. So I basically packed up the laptop and planned to spend most of my time in the lobby waiting for James. We got there and they were slammed. Two ambulances delivered patients that they weren't ready for yet. One of the ambulances would have to wait until 3:45 and they were expected in Douglasville at 4 p.m. and the driver was fit to be tied. Anyway, after 45 minutes they finally called James back. I took the truck back down a mile and gassed up at Sam's Club. I have never seen that Sam's gas station when it wasn't five to eight cars deep at each pump! Today, only ones and twos--maybe the damp, chilly weather? Next I went to the next shopping center over, got some candy and a cool gift at Five Below, then went to Michael's. If you're not looking for anything on clearance after Christmas, Michael's has to be the most depressing place on earth. I did get James a storage box. Went next door to PetsMart to get cheered up only to find all their budgies gone and one poor little lone conure left; I feel bad that I didn't stay longer and keep him company. Finally I bit the bullet and went to Walmart because I was out of yogurt soon, then went back to DaVita. The Hiram location is in an area with all doctors' and dentists' offices (except for a gym) and parking was wide open. The waiting area at the Hiram DaVita had a lot comfier chairs, at least (Bellemeade has nasty bucket chairs). They had a sofa, but there was no electrical plug at either end, and my laptop is old enough that the battery only lasts about an hour. There was a plug at a chair next to the Christmas tree, so I sat there. (No one turned on the Christmas tree, either, so I did that, too!) James got home way after seven, at which time it was raining lightly. We stopped by Dragon 168 and had Chinese for dinner. On Saturday we didn't do a blessed thing except I made a meat sauce so we could have spaghetti for dinner and Tucker got his two daily walks. Watched season one of Law & Order on Hulu (this began on December 16 and I've been looking forward to it, because as many times as I've seen the show on USA, WEtv, Pop, BBC America, and Sundance, I've never seen them in order and, indeed, have actually never seen some episodes at all, as first season proved), and then the final three episodes of Bull. I liked this series pretty well; it was enjoyable watching most of the characters grow and change, especially Chunk and Dani and Taylor. Jason Bull himself wasn't the most likeable character, but Michael Weatherly made him fun to watch. My absolute favorite character in the series was Geneva Carr's Marissa Morgan. It was nice to see her get her due in the final episode of the series. On Sunday we found out that Jimmy Carter had passed away. Of all the presidents, I think he has had the most notable post-presidential career, and was just all around Good Folks. God bless, President Carter. You're back with Rosalynn at last. Labels: Christmas, errands, events, food, health, outings, sickness, television, weather » Sunday, November 24, 2024
Tucker's Odyssey
After two meltdowns on my part, and Tucker finally being so fed up with me that he started growling and snarling at me, he slowly started to get better. On Tuesday he voluntarily ate small bits of meat. I had gone to Kroger and gotten cheap pre-made hamburgers out of the managers' special bin. I cooked the hamburger and fed it to him in quarters. First he ate the burgers alone, then with rice, then with vegetables and rice. A little bit more each night. One night I left miniature Milk Bones out. He ignored them for several days.One morning they were gone. Then he started eating his dog food again. He wouldn't eat the chicken flavor at first, just the beef, which was very puzzling. But he ate it, and that was a victory. And by Saturday he was dancing around begging for after-walk cookies again! We also finally saw the film Hidden Figures and loved it! The scenes where Johnson has to run back and forth to another building just to use a "colored only" rest room made the point about prejudice so perfectly. The other news wasn't as good. James' fistula is not "ripening" properly and he will need to have a catherization in which any blockage in the fistula is cleared. This will be done in January. » Sunday, November 17, 2024
The Dreadful Week
There was no warning. It began fine: I had bought James a new duffle bag for our anniversary to take to dialysis (the old bag was falling apart). It has a separate compartment intended for gym shoes or a wet towel/swimsuit, and we have put his blanket in there. He doesn't really needed it, because now that he's on dialysis, he's not cold all the time. There's a compartment for his sugar-free mints, one for his snacks and visor, one for his water bottle and a juice box, one for his TV schedule, and then the inner compartment has a pocket into which he has two paperback books. The central compartment now just holds his noise-cancelling headphones (dialysis clinics are loud), his neck pillow, and his tablet (charged daily so he can watch Battlebots and whatever that Sylvester Stallone show is).Tuesday was a disaster. James twisted, thrashed, and kicked because he was in pain all night. Needless to say I didn't sleep, and we went to Hanger to get his back brace fitted in very ill tempers. As we pulled out of the driveway a car stopped in front of us and the driver got out. I've talked many times about Tucker's adversarial relationship with Max, the German Shepherd on the corner. I don't know how much I've mentioned his relationship with Champion, the German Shepherd down at the end of the street. His people rent a house in the lower cul-de-sac. I watched Champion from when he was a young dog. He has always approached Tucker with curiosity--"Oh, look, what a cute little dog!"--and Tucker approached him back with his head up and his tail wagging obligingly. It was obvious they both wanted to play together, but of course his person was walking him one way, and I was walking Tucker the other. It was Champion's owner who stopped to talk to us: Champion DIED on Monday; he said they didn't know why. We couldn't go home afterwards because James was scheduled for the bone scan at Kaiser, so we spent about a half-hour in Barnes & Noble before heading to Townpark. I was quite woozy and sick; we were going to stop at Walmart for yogurt and I was so sick we didn't. I did manage to get us a couple of treats in Bernhard's Bakery. I was feeling better Wednesday, so after finishing the Lidl/Publix/Kroger grocery route, stopped at Walmart on the way home for the yogurt. In the evening I finally bit the bullet and ordered new phones. My current cell reboots at odd times and loses connection on local streets, and it's beginning to eat battery. I got James a desert tan color and I got a red one. Maybe it will be easier to find. Then...out of nowhere, James got up Thursday morning, went out to make breakfast, and found out Tucker had vomited on the floor. Sometimes he does just get an upset stomach and vomit. But Wednesday he only ate one dog biscuit and a mouthful of rice in beef stock. He was listless and his eyes were tragic and he'd only drink if he licked it off my hands during the day. He drank more at night and ate a couple more dog biscuits. By afternoon I called Riverview and made him an appointment for the next day. Thursday Tucker wouldn't even walk down the stairs voluntarily. I scooped him up and carried him on his back in his blanket and he just lay there. He hates being held upside down. His breath was raspy. He stayed at the vet the rest of the day and overnight. He had a high fever (105℉!) and diarrhea and had IVs getting antibiotics into him and helping his dehydration. We went to pick him up but he was limp and listless on Friday. I had to feed him with Hill's Urgent Care soft food with a syringe, and this was the only time he struggled. He has a dangerously low level of white blood cells in his body, can't go near other dogs and we have to watch him because he's susceptible to sepsis. It was so bad Saturday night I had a meltdown. This is too fucking much. First it was Oliver, then James in the hospital, then James at home, then the falls, and now it's poor Tucker. I felt totally helpless. Sunday was a little better, as I did get some stuff done, but a real struggle to feed Tucker via syringe (I mean, I get it! I would hate it, too!). Labels: dogs, food, health, pets, shopping, sickness, smartphones, technology » Sunday, November 10, 2024
The Turn of Events
We saw our first Christmas lights Monday night, November 4! I love Christmas decorations, guys! But, too early!Tried to avoid election coverage on Tuesday by watching a movie, but after the film curiosity got the better of us and we stayed up until midnight watching the returns. I will admit I am not happy, although I disliked both candidates. When your new "leader" nominates an anti-vaxxer to run a health organization there is something wrong. Our parents worshiped the ground Drs. Salk and Sabin walked on, because their children were not crippled, were not confined to an iron lung, did not die from polio, all because of vaccines. Smallpox was a dreadful thing. Just not right. Chores for the rest of the week, and a visit to Dr. Salazar on Friday ended the week. We had not yet seen the orders for the tests, but he assured us they were in the system. So Saturday was a very busy day: we were up early to get in line for free electronics recycling day. Yay, that stupid microwave James keeps barking his leg on is gone. Also my venerable vacuum cleaner, which gave me much joy. The new one works wonderfully, but it's still too heavy. Then we had Hair Day and got to see Mel and Phyllis! We nipped home afterward for a meal (James made pork chops and we ate at three), and then went to Kaiser Townpark. James had two CT scans starting at 5:40, and then we had to wait the hour until his 8 p.m. MRI. It was a relief to get home. It was chilly and cloudy on Sunday, such wonderful weather! Tucker and I had a long walk, me clad in my favorite fabric, flannel! Later I put up the upstairs and foyer Thanksgiving decorations Labels: Christmas, election, events, exercise, friends, health, sickness, Thanksgiving, weather » Sunday, November 03, 2024
Changes in Space and Findings Whilst Shopping
James has finally seen the spinal doctor at Emory!Not that it did him much good. The appointment was wayyyyy over at the old Executive Park complex which used to be a rabbit warren of little buildings, many of them rented by CDC. I had attended meetings and classes at Executive Park; the plus of going there was that it was near a plaza that was filled with restaurants, including a Chinese place we were very fond of going to for Friday lunch. All of the buildings are now gone. In its place are the big Arthur Blank Hospital, part of Children's Hospital of Atlanta, a bunch of construction, and the Emory Muskoskeletal and Spinal Center, which was us. The building is shiny new, with a very nice-smelling cafe at the entrance. They have an interesting system of elevators, too. When you get there you register, and they give you a ticket telling you where to go: Level 4, for example, and then Aisle E. Then you go to the elevator bay which has a central panel. You tell the elevator you're going to Level 4, and it tells you what elevator to take. There are no buttons in the elevator; it's kinda spooky. Anyway, we saw Dr. Hobson, but nothing was done that Thursday; she wanted a battery of tests first: a complete spinal CT scan, a complete MRI of the spine, and a bone density test. She doesn't want to start a treatment for his lower back that will screw up his upper back. She also prescribed a back brace, which we'll get from Hangar Orthotics, and hydrotherapy. When we got home we tried to set up the CT and MRI immediately, but the orders weren't in the system yet; they did not go in until Wednesday and James made appointments on Saturday evening the 9th at Townpark, but he couldn't get the bone scan until the following Tuesday. But it will be done quickly, so we can hopefully get James some pain relief. This wasn't our only appointment this week; we also went to see Dr. Coyle. The fistula still isn't "ripe." You know, we were told, both times, that this thing would be "ripe" in six weeks. Now they tell us six weeks to three months! In happier trips, we drove out to the Costco in Paulding County again. We got supplies, but there was no ScotTissue! We also stopped at the Walmart out there and I was able to find twelve cans of the recently discontinued Harvest Tomato soup, which I use to make chicken cacciatore. I think this is the only big haul I'm going to be able to get. I now have 20 cans, and then we will need to find something else. I'm very sad. James had already filled in his mail-in ballot, and I did mine on Wednesday. When we left dialysis, we drove past the Smyrna community center where they were having early voting. This year they did allow me to deposit James' ballot along with mine; last year they insisted he do it himself. I put up the outside Thanksgiving decorations on Friday only to discover I had no Thanksgiving flag! I ordered one immediately, a very beautiful surround of autumn leaves surrounding the word "thankful." Then I drove out to the Walmart near Roswell Road and Cobb Parkway in hope of finding more Harvest Tomato soup. No luck there, but they did have slip-on canvas shoes that I use for dog-walking at night. And just in time, too, because when I got home and swapped out the inserts in my old dog-walking shoes, I discovered the soles of both shoes were cracked! This Walmart is next to Sam's Club, so I went in for ScotTissue. Thank goodness, they did have some! They also had—oh, my ears and whiskers!—poultry gravy. It has been like pulling teeth to find containers of poultry gravy; you can get brown gravy all the time, but not poultry. I ended up paying something like fifteen dollars to get a canister of McCormick poultry gravy mix from Amazon, and there they were at Sam's Club for $5 each. So I bought three! Uploaded a new fanfic as well: "Haunted." Labels: change, clothing, food, health, shopping, sickness, writing » Sunday, October 20, 2024
Infections and Outings
This week's high even had a disappointing low. On Sunday we went to the Apple Festival and, while it was nice to walk the fairgrounds, it was very tiring and I was suffering from lack of sleep, and feeling very woozy and out of it.We made a short stop at Panorama Orchards for the necessities of life: fresh Granny Smith apples, blackberry spread, the tea sold in little wooden crates (but they quit making the ginger peach), sugar-free taffy, and a few other things. Then we decided to stop in Canton to eat, hoping to go to the Thai place, but they are closed Sunday and Monday. Brooklyn Joe's was slammed, so we went to Cheeseburger Bobby's. This was really good: you got enough meat in the burger and the onion rings were excellent! It was pretty expensive, though. Stopped at Books-a-Million briefly, then got stuck in traffic on the way home. ::sigh:: The week started badly because we had to see Dr. Coyle on short notice. They noticed at dialysis that his fistula incision was weeping and had been giving him IV antibiotics on his last two visits. She said she didn't want him having that much vancomycin. She put him on oral antibiotics and told me to put Betadyne on the incision and keep it covered. [The Betadyne did do the trick eventually, but we can't figure out what happened in the first place as we followed all her instructions on caring for the wound to the letter.] Just chores for the rest of the week, including cleaning out decrepit emergency toilet-flushing water bottles from the garage. » Sunday, September 29, 2024
A Week So Busy...
...that we may have to break it into parts.
Might as well get the nastiness out of the way first. Hurricane Helene was in the news a lot starting September 24. Supposedly this monster was due to gather a lot of strength and not lose it after it crossed the Florida/Georgia line. I immediately began gathering every small power supply we had in the house just in case we lost power for more than an hour, as our internet and main computers are already on APC power supplies, as is the television and Roku, but they would be needed for emergencies. On Wednesday it poured and we took the rollator to dialysis because the power chair isn't supposed to get wet. On Thursday we heard that a 15-20 foot storm surge would probably hit Tallahassee when Helene made landfall, and then the damn fool thing was going to come directly up I-75 and hit Atlanta head on with 75 mph winds. These were the conditions predicted when we went to bed on Thursday night. Instead, we slept almost soundlessly until five, when rain lashed at the windows and we could hear the wind raging outside. By the time we got up it was sprinkling, and then partly cloudy, with some very blue sky visible. Just south of us the storm had turned east, so Atlanta and Chattanooga were marked "safe" except for some downed trees around town. Instead Helene barrelled into western North Carolina like a gigantic watery freight train. All the beautiful towns and villages there were lashed and pounded. The "Rainbow Bridge," a little tribute place where you could fasten a memory of a beloved pet, was washed away. The gatehouse at Biltmore Estates was 2/3 covered in water. The little town of Chimney Rock was completely washed away. Big chunks of the freeway in eastern Tennessee and western NC are gone, as well as smaller roads. The Blue Ridge Parkway has been chewed up in many places. In fact so many roads are out that they cannot bring in supplies to many places and are resorting to helicopters, small planes, and, in one case, a mule train! Mountain Mule Trackers have been using their mules to get supplies into that part of the state. Fall is the time when much of western NC and eastern TN make money due to leaf peepers. They'll have no business this year. Dolly Parton personally donated a million dollars to recover efforts. James' sister, in Gaffney, South Carolina, lost power, but they are in the country and have a generator. [They only had power restored on October 6, thanks to tree cutters shipped in all the way from St. Louis, Missouri, followed by the local linemen. Electrical linemen are the GOAT. These folks need to be paid more money, not overstuffed politicians and performers.] So while Nature was doing her damnest, we were able to carry on: I cleaned out under the bathroom sinks and used shelves to get extra storage space; we stopped at Trader Joe's on the way home from James' surgical followup and found lots of fall goodies; Thursday it was cool enough for me to go for a full walk!; on Saturday after Hair Day we drove out to the Costco in Paulding county, gassed up my car, and found more Belgian chocolate mousse in the handy little glass containers as well as lamb chops for $5.99/pound; and stopped at the local Walmart and finally found some of my yogurt! I bought two weeks' worth and need to check the local Wally Worlds for more. In James news, Dr. Coyle seemed pleased with his fistula so far, even though he complains he cannot feel what they call "the thrill," the buzzing that a successful fistula makes. I can feel it plain as day, it vibrates like a purring cat. The skin around the surgical area has also swollen up like it's supposed to, which the original fistula did not do. Oddly, his blood pressure was rather low on the visit, but she did not seem concerned. And Friday he got lucky and got an early chair at dialysis! Sunday he got the nicest surprise of all. His best friend J.P. called ... um, from wherever he and his wife are living now; I've totally forgotten. You should have heard them on the phone exchanging their health challenges. Apparently J.P. also twitches in his sleep and has been diagnosed with narcolepsy. We had some of the lamb chops tonight, in the air fryer, with mint jelly. So good! Labels: chores, errands, food, friends, health, local, relatives, sadness, shopping, sickness, storms, weather » Sunday, September 22, 2024
Medical Mutterings and Spending Money
It was another doctory week, but not overwhelmingly so, like the "day of three doctors' appointments." James had dialysis the usual three days, on Tuesday we went to see Dr. Mobley and on Thursday James had an MRI on his back, ordered by Dr. Mobley, to see what's going on with his back. Friday before dialysis we had a visit with James' cardiologist and had enough time to stop at the Perimeter Barnes & Noble and stopped by MicroCenter on the way back to get a new bluetooth keyboard for my phone. My faithful Freedom Pro seems to have given up the ghost.The house also had to see a doctor, or rather the garage did. There are thin, taut metal cables on either side of the garage doors that roll up when the door rolls up, and then unspool and stay taut when the doors are down. One, on the truck's side of the garage, had quit spooling up over the weekend, and the other quit as the week started. Apparently this is Very Bad and can warp/break the garage door panels. So we had to have "Don't Panic! Garage Door Repairs" come to fix it. It cost nearly as much to fix as the garage door panel repairs back in 2014. Gah. So, we had some good things this weekend: while we had to give David's birthday party a miss (my lower GI was in an uproar) on Saturday, we had a great time at Aubrey's birthday "do" on Sunday. The cake was based on Hazbin Hotel, a fandom I hear about on Reddit, but haven't investigated, and, best of all, the company was wonderful. Alice made it so we could take the power chair up to the back door and then James was able to limp in on the folding walker. I also finished and posted a story I began on September 15, finished on the 18th, and posted on the 21st. It seemed to be well received. In a very annoying development, DaVita will not allow me to go back and help James set up his stuff any longer. They say it's against the rules. Now, when we first started going there in July, the rules clearly said that if the person having dialysis could not get to the chair by themself, they needed to have a helper come in with them. James can get from the power chair to the dialysis chair if the power chair is next to it, but he cannot park the power chair out of the way and walk the few steps to the dialysis chair without help. The nurses are not supposed to do this, so he would get out and I would park the chair, then help him get his stuff set up, wait for James to get a finish time, then leave. Now the clinic manager says I can't do this anymore. If I want to do this, I have to get a doctor's note. Once I have the doctor's note, we have to take a conference class, and then answer a questionnaire...what the absolute f*ck? Just to help him pull stuff out of his bag? The funny thing was that when I went to pick him up, the clinic manager had gone home and the nurse on duty just let me in. She didn't want to deal with the power chair and didn't mind me coming in the back at all. So it's just one person with a stick up their butt... Labels: annoyances, birthdays, books, computers, friends, health, home repairs, sickness » Saturday, August 31, 2024
And Even More Medical Stuff
Went to Kroger this afternoon as has become my habit since James started dialysis to find the dairy cases completely rearranged and my favorite flavor of yogurt nowhere to be seen, and no more space for it on the shelf. First it's disappeared from Publix and now it's gone from Kroger. After I came home, I checked Chobani's website to see that they still do make the flavor, then called Publix hoping I could order it. The manager said he would look into it for me.Tuesday we had to go back to Kaiser Townpark for James to get the examination on his eyes to see if the Plaquinel is affecting them (it's not, so far). We discussed the computer glasses and were told that his distance glasses—the ones with the transitional lenses that "have to be trained"—are the ones he should be using for the computer. Wednesday was another dialysis day, and then, success on Thursday! I finally found the rub-ons I need for the porch. They were in the same places I had already looked a couple of times. Perhaps it's the little blue guys again. In the afternoon we went back to Townpark so James could have a new echocardiogram. We had lunch at Pacific Buffet and I bought some books at Barnes & Noble. James bought a DragonCon streaming membership and we were able to see a little bit of the convention this afternoon: a Star Trek: the Next Generation reunion panel and then the John Cleese panel. I believe Cleese is here for the entire convention, but he is only doing one panel, and this was it. Sunday has its own entry... Labels: conventions, crafts, food, health, sickness » Sunday, August 18, 2024
More Medical Muddles
This week we had a new wrinkle: James' pulse has been slow. We called up Kaiser and they got us an appointment on Tuesday with a Dr. Carpenter. We thought for sure he would ship us off to Urgent Care, which was, providentially, empty, but he ordered an X-ray and a blood test, and then took an EKG. He said because we were going to see James' cardiologist the next day, he felt safe just doing that. And so we did; Dr. Shash said that dialysis needs to take more fluid off of James. Both he and Dr. Carpenter think he should be on some kind of diuretic to help him shed fluid, but DaVita doesn't think so. They did take him off his high blood pressure meds, which they thought might have been the cause of the low pulse. He really doesn't need the medication anymore due to the dialysis.I hate that DaVita and Kaiser don't talk to each other. It's Kaiser I'm paying for medical service and to keep James healthy, and I don't like DaVita sticking their fingers in the pie. In happier news, we went downtown on Thursday and wandered about, visiting the new Italian grocery and goodies store, the candy store for sugar-free candy, and the Corner Shop (the British store). The only other notable event was a horrific thunderstorm on Sunday; everything got dark, the wind whipped up and the rain lashed down. But it cleared up in time to reveal a beautiful full moon! » Sunday, August 11, 2024
A Week of On and Off
It was an okay week, although we are worried that James' lungs may be accumulated fluid again. When we saw Dr. Salazar on Friday we asked him to listen to his heart and lungs. He said they sounded okay, so we're going to leave it to DaVita to take the proper amount of fluid off him per day.We did have a couple of fun excursions this week. On Tuesday we went to Ollie's discount outlet to get new vinyl bungie cords for the big trunk we keep in the back of the truck. The sun rots them after awhile and we have to buy a new set. We bought two sets, so we'll have a spare next time when the new ones get broken and can go looking for another set while still having a usable set. We also got a new bungie cord to go around the tarp cover for the power chair. The last one rotted out. On Thursday we drove out to Canton, went to Books-a-Million, had dinner at Uncle Maddio's, and finally stopped at BJs for fruit cups, maple syrup, and also AAA batteries. Remember when everything took double As? Now it's almost always triples. Friday we got a call that the infectious disease doctor at Urgent Care thought Augmentin wasn't good enough for James' UTI. They want him on Fosfomax again. Sigh. The Augmentin was doing well, too. I could tell the the Fosfomax isn't going to work. It will kill the UTI for a week and then things will start up all over again. I spent Sunday looking for the damn rub-on letters I need for the signs on the front porch ("Dog loose in house" and "No sales or solicitors"). I'm getting so tired of those fripping roofers knocking on the door at least once a week. Still can't find them. Labels: annoyances, excursions, food, health, shopping, sickness » Sunday, August 04, 2024
Three Strikes: Everything, Sadly, Normal
Empty. The house is empty, even though Ollie didn't chirp all that much
in the beginning and didn't make many noises even when he was sick. No
one to share my peaches and plums with. No one to eat out of my oatmeal
spoon. "How quiet, how quiet the chamber is..."
» Thursday, August 01, 2024
Oliver
By this week, Oliver had turned into Beth March. He seemed sometimes to gain ground—once, for instance, we uncovered him and found him up on the high perch that both Snowy and Schuyler had favored—but despite the antibiotics and the anti-inflammatory, he never seemed to totally gain. I was losing him little by little as each day went by. I think he's been sick for so long that, like Beth, he just couldn't fight the tide going out any longer. He'll pretty much just sit in my hand and fluff up and sleep.
Tuesday I totally forgot the appointment with the vet wasn't until Thursday and took the poor guy all the way over to Vinings. Dr. Bostick wasn't even in the office, but the nurse tried to cheer me up. On the way home, as we were turning off South Cobb Drive, a big wedge of geese flew overhead, right over our heads, honking loudly. I told Oliver maybe someday he could fly with the geese. He was so droopy Wednesday morning, plus he had fallen off his perch at one point (I put some hand towels at the bottom of the cage so he had a soft place to land), but after eating some millet and being vaporized he seemed to perk up. And then I took a nap and when I got up to dress to pick up James, he was doing badly again. He bobbled when he sat on his perch, and otherwise he's asleep or sort of out of it. He was so bad by the time I had to leave I took him with me because I thought he was dying. Cuddled him for the rest of the night. Instead of letting him sleep in the cage, I put food and water in the carry box and covered him with facecloths and he slept on my night table Wednesday night. At six he fell off the perch and I had to cuddle him before putting him back in and going back to bed. Our appointment was today at eleven and I knew what I had to do. Oliver went flying with the geese at about 11:30 a.m. Dr. Bostick took one look at him—but she didn't have to, I already knew. They were all really sweet once they saw how bad he was. Fly, little one, second star to the right and straight on til morning.  My dad died on August 1 in 1985. God, I hate summer. » Sunday, July 28, 2024
Bells and Budgies and Books
Well, now I know I'm depressed between James' medical troubles and Oliver being sick: I took about an hour to myself on Monday, since I had to go to Kaiser after dropping James off at dialysis to pick up some meds for him, to go to Barnes & Noble to cheer up. It didn't work. I was totally miserable walking around, even though I did buy Leather and Lark and Ashley Poston's new book. If going to a bookstore can't cheer me up, how will I manage? Labels: birds, books, budgies, food, Olympics, shopping, sickness » Sunday, July 21, 2024
Three Appointments in One Day? Never Again!
We are getting into the rhythm of the three-times-a-week dialysis, but still had a horrendous Wednesday.It looks like Monday will be my day at Kroger, to pick up milk (alas, at a higher price than the Mableton Kroger) and yogurt, and burritos if needed (and of course I could always survey the manager's special meats). Maybe I can do Publix on Wednesdays. Oliver went back to the vet on Tuesday. She said he's not worse, but not a lot better, but she stopped the medicine and asked me to just keep him warm and vaporized and encourage him to eat, and she'd see him in two weeks. James has been doing well with José, the physical therapist. He is giving James exercises to take down the back pain and also a way of walking that helps his diaphragm expand properly. We also have Shanté (the occupational therapist), who comes once a week and gives him a different set of exercises. Thursday we couldn't rest from our long, long Wednesday because we had to go to Costco in the afternoon to order James' new glasses. We also tried out the "new" gas station: they added four pumps so that now there are twelve—that Costco gas is always packed—and they also have lights on the uprights to tell you which pumps are occupied. Wednesday was the real bear: James had another 7 a.m. chair so we could go to his afternoon eye appointment that it took us three months to get. Up at six again with only three hours sleep; after I dropped him off, I figured, hey, who's going to be at Publix at this hour? and I was right, only two other people were there. Also noticed that milk is cheaper now at Publix; who would have thought it? So I got that done, except they didn't have enough Smart Balance to restock the fridge (I took care of that on Friday after I dropped him off; drove down to the Publix across from Sprouts to get three more tubs—now it should last until the next time Smart Balance is on twofer). Anyway, when I picked him up at eleven (never having gotten any more sleep) we had to go directly to Kaiser Cumberland for James' followup appointment (from Urgent Care on the 13th). The appointment was at noon, but we didn't see the doctor until 1:30, and it was so cold on the front side of the building that even I was cold, and James, with his anemia, was absolutely freezing. The nurse didn't have a blanket, but she brought him a sheet that we doubled up as a shawl. When we arrived, I'd had half a stale Poptart and a slice of toast with butter to eat. I mentioned this to the nurse this--I'm terrible with remembering names and I don't remember hers, but she's always so nice--and she gave me her homemade fruit cup! She said I needed it more than she did. She makes them on weekends so she has them for the week: grapes, strawberries, and pineapple. (I shared the pineapple with James.) Very thankful for small kindnesses. And then we had to hotfoot it up to Kaiser Townpark for the eye exam. Pushing James in the rollator at TownPark is So Much Fun. Not. By the time we got home, James could barely make it up the four steps to the foyer and the chair lift. Canned soup was all we could manage for supper. Saturday we slept in and, after walking the dog, all I did was watch the ChargeTV marathon of Law & Order: Criminal Intent, and I fell asleep several times during that! Sunday we got to do the one fun thing for the week: Juanita's birthday party at Longhorn. Unfortunately they're building an Olive Garden next door, and half the parking lot is gone, so I had to drop James and the rollator off and go park the car elsewhere. It was hot and sticky, so no love. But seeing everyone was so great! » Sunday, July 14, 2024
Medical Drama--And Two Big BANGS
This has been an eventful week in many aspects.
Our own particular hell started on Monday evening. At two-thirty, I dropped James off at DaVita, bought a couple of things at Kroger, and went home, sorted meds for the week, cleaned the master bathroom, chatted with a friend, edited a story. At six fifteen I went to pick up James. Out we tooled to the truck. James got into the passenger seat. I rolled the chair on the lift, it started to lift, got about two inches high, and then it dropped back to the ground with a bang. You guessed it, guys. The lift broke again. This time the hydrolic pole that lifts and lowers the platform broke. At this point we were stranded, because, while the chair has the range to trundle home, the truck can't get anywhere dragging the ramp behind it. I called AAA, to see if they could get me a rope, because I could (barely) hold the ramp closed and lift it up, and if I could tie it together, the truck could get home. But when I tried to tie it up with a bungie cord, it snapped in half. AAA says they couldn't get me a rope; they could give me a tow, which wouldn't work. Well, God/fate/someone sent Eduardo, who was doing business a few stores down. He had a ratchet strap in his truck, and he lifted and tied the ramp upright with it, and then we had a couple of shorter bungee cords to keep the folded-up base parallel to the lift pole. Now I started to worry. What if I drove home and it let go? And James would have to trundle the entire two miles home by himself. What if the chair lost power or he had some medical problem? He's only out of the hospital ten days. Eventually, I called Alice. To make a long story short, she and Aubrey [her daughter] came to the shopping center, and Alice drove home behind me to watch the ramp (it did drop vertically slightly, to the point I couldn't get the truck in the garage due to the curve in the driveway), but we got it home. And Aubrey walked all the way home with James. She found the easiest route via Google Maps, with the least ups and downs, and after about an hour Alice and I saw them approaching on Life 360 and we walked out to the corner to meet the wayfarers. There's that saying "God never gives you more than you can handle." God apparently thinks I'm Supergirl or Wonder Woman. If I'm not at the end of my rope, I can see it from here. For the rest of the week I had to trundle James around in a wheelchair, and later in his big rollator, which I didn't realize that I could push if James tucked his legs up (the rollator is actually easier to maneuver than the big wheelchairs). The rollator is heavy, though, and my back is really feeling it. Wednesday was really a nightmare: because James had a followup appointment with Dr. Mobley in the afternoon from his sojourn to Urgent Care earlier, we had to be at DaVita at seven in the morning, the only seat they had. We both had four hours sleep. I went to Kroger, then went home to get more sleep, but it doesn't seem to be helping. Friday I did a Lidl/Publix run and made chicken cacciatore for supper. Tuesday Oliver went back to the vet. He scolded Dr. Bostick the entire time he was in the weighing box. She took him off the medicines! But she wants me to continue vaporizing him and keeping his cage enclosed so he's warmer. I wrapped three sides of his cage in Glad Press'n'Seal so he gets more light; maybe it will perk him up. He looks so sad. I am wondering if he's suffered neurological damage from being sick for so long, because when he's not eating or sleeping, he just sort of sits, sometimes with his head down, looking sad. And she says to make him eat. Thursday we took the truck to Mobility Works. This new part will cost $1700. Now we're nearly up to the price of a completely new chair lift. Plus Bruno [the manufacturer] apparently can't believe the lift is breaking down like this. They keep asking if the chair isn't heavier than the lift can tolerate. Well, dudes, when the idiot bashed in the previous lift at the Kaiser Glenlake office, we sent the specs on the chair to you, and this is the lift you sent. This is on you, not on Mobility Works or us. The manual says the chair weighs 326 pounds, the scale at DaVita says it's 317, and that's what we told you. Anyway, someone finally called to make an appointment for a followup about the fistula and why dialysis doesn't want to use it. It would be with another doctor. It also wouldn't be until August 20 and I was very disappointed. I logged on to Kaiser to put all of James' appointments on his phone, and only then realized the fistula appointment was at the Southwood office. No. Just no. That's an hour's drive on a treacherous stretch of highway and every time we have had to go down there we have had our hearts in our mouths because the traffic there is so bad. It's either bumper-to-bumper or racing at 90 mph with cars darting in and out of traffic. There's a reason we quit driving to Warner Robins although we miss seeing Maggie and Clay. I sent Dr. Austin a terse note that said neither James nor I were in fit health to make a trip to Southwood, and wanted to know why Glenlake was not an option. I also asked straight out for the results of the two ultrasounds of the fistula we had at St. Joe's. (Someone did eventually get back to us with an appointment for Glenlake, and, as a positive note, it's sooner, on August 2. We got no report about the fistula.) Saturday should have been a fun day, but after we went to Hair Day—James was so tottery that Ron left the driveway clear and we came in through the garage; it was a busy day for Sheri, too, as she had a bumper crop of haircuts—we had to go up to Urgent Care, because since James got out of the hospital, due to the Foley catheter he wore all week, he had another UTI. It wasn't crowded and we weren't there all that long. This time the doctor is trying him on two doses of the powdered stuff, Fosfomax. I don't hold out much hope for it to work, as it's only two doses, and James has had it before, three doses, and it didn't work. This all paled to what happened in Butler, Pennsylvania, at a rally for Donald Trump. Despite all the Secret Service presence, a shooter was able to get on the roof of a nearby building. Luckily Trump turned his head and all they knicked was his ear, but a man who was at the rally threw himself over his family and was killed. The shooter was some kid—twenty is a kid to me!—who had researched killing both Trump and Joe Biden. Of course now this has made a martyr out of Trump. Labels: birds, events, friends, health, pets, repairs, sickness » Sunday, July 07, 2024
The Dialysis Dance With a Glad Press'n'Seal Chaser
James had his first week of dialysis.It was ultimately frustrating, at least for me; as I ended up in Kroger every single time (DaVita and Kroger are in the same shopping center, about two miles from our house) and if there's anything I loathe, it's grocery shopping. The temperature was sizzling. And because the shopping center is popular, it's a pain in the neck to find parking. But I picked this location because it's close to the house and, if there was some type of emergency with the cars, James could actually ride the power chair to dialysis and back. Friday night was kind of the last straw; I thought my third visit to Kroger was my last, and then the roll of Glad Press'n'Seal (which enables James to take a shower with the permacath in him until they get this stupid fistula business worked out) fell into the toilet. Tuesday I took Oliver back to Dr. Bostick. She says he is better, but not much, and she prescribed another medicine. As you can imagine, he hates that. It's an anti-inflammatory. And she wants me to have the vaporizer on for him. James' in house physiotherapy coach came this week: José, a young man originally from Puerto Rico. He has James doing a walk back and forth holding something in his teeth; when he breathes only through his nose it expands his diaphragm and circulates more blood to his lower extremities. We also have an occupational therapist, Shanté, who came on Independence Day. We had a quiet Fourth. I found the Bristol, Rhode Island, parade online again and had that on, and then we watched 1776 as usual, and then in the evening watched the Boston Pops concert and fireworks from the Esplanade on the Charles River via Bloomberg television. I noticed that the people running the cameras finally got the message and there were no shots of the crowds working the fireworks this year, just the fireworks! It was a good night, not a lot of smoke accumulation. James finally got to do something fun: I took him to his club meeting on Saturday, then went by Sam's Club to get Press'n'Seal (good deal, two huge rolls). James' meeting ended early when one of the guys passed out from the heat inside the Union Hall—the air conditioning wasn't working—so we picked up some gasoline at Sam's Club. On the way home we got stuck in a gullywasher of a rainstorm, to the point that my clothes were soaked (and still wet on Sunday morning!). By then I was so exhausted all we had for supper was soup. Labels: events, health, holidays, Independence Day, shopping, sickness, television » Sunday, June 30, 2024
Close Call
We prepped for Urgent Care Monday morning, but we never made it. James made it down the stairs okay, but when he got to the door to the garage, he got one foot down, and could not get the other foot out the door. Then his knees began to fail. Luckily we had a shower chair in the garage that we had bought for his sister Candy and never got to give her. I shifted it under him and he was able to sit. Then I called 911.The paramedics came and his vitals were okay, but he definitely couldn't walk anymore. They called for an ambulance, but there was an hour's wait. Instead they helped me get him in the car and we went to the emergency room at St. Joseph's. He wasn't in triage ten minutes when they said he "was the sickest person in the emergency room" and we went right back. To sum up, his bloodwork was terrible; his creatitine was sky high, his BUN 175, his GFR down to 8, and he had much too much potassium in his system. Right before I had to leave to get the animals to bed, he was assigned a room, 508. I woke up about four feeling uneasy. I noticed Kaiser had called me three times and the phone hadn't rung, even though I disabled Do Not Disturb. I called the hospital and James wasn't in 508 anymore; he was in 207, in Intensive Care. I promptly had hysterics. The switchboard at the hospital was very nice and got me in touch with his floor, where the nurse assured me he was fine. His potassium was still high, so they had transferred him into ICU. This was a grubby little room with the toilet behind a shower curtain and nowhere for me to sit, so I sat on the toilet, and later on a folding chair which I would recommend as a torture device. I had bought Zaxby's wings for lunch/supper and felt guilty because no one would let James eat because "we don't have the doctor's permission." The doctor wandered in about four and said, "But I gave orders that he could eat." Sigh. This became a lietmotif for the week: he would need something, but it would need a doctor's approval, but the nurse never got it, like having his sleeping pill at night. He went 72 hours without sleep because they wouldn't give him one except the first night. He also never got miconozole powder for the fungal infection he had on his lower abdomen, and the skin was all cracked and red. They had, I learned, stuck a tube in his neck and had to dialyze him in the middle of the night. They took two liters of fluid off him. So the time had finally come, the thing we have been fighting off for six years. He's on kidney dialysis for good now. Wednesday I was going to pick up a meal at Tin Drum, but the line was out the door. I grabbed a burger and fries instead and was starving all day. I did check out the cafeteria: they had ... shudder ... fried haddock or something spicy chicken. Gross. They also moved James back to the fifth floor (502), he'd had dialysis, and was dead bored. You know it's dull when there's nothing on but Law & Order: SVU. I did get my Tin Drum on Thursday, but I wouldn't eat until they took James downstairs (several hours late) to get a permacath put in. Why a permacath, you ask? Didn't James have fistula surgery last August because Dr. Kongara knew the dialysis was coming because his BUN was rising? Yes he did. And the surgeon told James that the fistula was fine. But the hospital wouldn't use it because the port area "wasn't big enough." (They gave him two ultrasounds on the arm. We never did hear how they came out.) We were so bored we watched, James at the hospital, me at home, the debate tonight. It is pathetic that, in this huge country, these are the best two candidates for President we have. Daniel Webster, Charles Sumner, Abraham Lincoln, Frederick Douglass, W.E.B. DuBois, and other statesmen are turning in their graves. By Friday, James still hadn't had any sleep. I got Zaxby's again because it was just easier, only to arrive and discover they were sending him home. Of course, that took hours and ... surprise! ... they sent him home at rush hour. They had a whole bunch of plans for at home physical therapy and arranged for us to have dialysis at the DaVita center two miles from our house in the Smyrna Kroger shopping center, and they said he was well enough, but when we got home he didn't have enough strength to get up the four steps to the foyer where the lift chair is. Oh, Dr. Austin waltzed in before I showed up on Friday. His first words to James were, "I hear you almost died the other night." What the heck??? Yes, his potassium was so high that, if I hadn't taken him to the emergency room on Monday, his heart probably would have stopped by Wednesday! So, for the second time this week, we called the fire department. God bless them! With a bunch of sleep James was feeling better next day; he even cooked breakfast. I did chores on Saturday and we were both sick on Sunday (food poisoning?). Monday I hope he will be strong enough to get down and up those four steps, because he has to go to dialysis. In other news, I finally found an avian vet for Oliver (who is indeed an Oliver and not an Olivia). I took him to Riverview Animal Hospital where we used to take Leia so long ago. It turns out Oliver has an infection in his air sacs (sort of like bird pneumonia). I think he may have gotten it when he boarded in March. I have to give him medicine twice a day, and he has to stay in a hospital cage (surrounded with a blanket except in front) and I'm to eat with him to make him eat more. I had him in the spare bedroom while James was in the hospital. He hates taking the meds and the fact that I had his wings clipped so he wouldn't get away from me, and I feel like such a heel. » Sunday, June 23, 2024
Heading for a Fall
James' back continued to hurt as the week crept on. We got an interesting little call from Kaiser saying that James' UTI was complicated by several different bacteria and perhaps it would be prudent to change his medication. We were seeing Dr. Jacobs on Tuesday and we said we would discuss that with him.Dr. Jacobs was an older man who put us at ease. He said he was the one who had hired our doctor, Mobley. We discussed the antibiotic and he wanted to be cautious and let James finish the cephalexin and then be retested to see if he needed further antibiotics rather than "changing horses midstream." We agreed. He also said a short course of high dose steroids might relax his back, so he put him on 60mg for three days, 40 for three days, and then 20 for five days. We also got the lift back, my savings account considerably poorer. Steroids usually make James lose weight. Well, it didn't this time. Taking one torsemide is certainly making him gain. I finally got frightened enough on Friday to give him a second one. We tried to go out on Friday: ate at the South Cobb diner, which is the sister restaurant of the West Cobb Diner with better parking. Alas, they don't have the cucumber salad anymore, and they have changed the turkey dinner stuffing; it's more cornbready and tastes, frankly, like Stove Top. On the way home we stopped at Ollie's Discount Store. James continued to deteriorate over the weekend. His back still hurt badly, and now he was complaining of feeling weak, and he is acting distracted. When he took a shower on Saturday night, there were dozens of little bumps on his abdomen that look like he is accumulating fluid there, and his skin is irritated. We were supposed to be at Libertycon this weekend, but we cancelled the hotel reservation on Wednesday right before the cutoff time, and James talked the Libertycon people into rolling over our membership till next year. Labels: conventions, food, health, shopping, sickness |
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