Well, now I know I'm depressed between James' medical troubles and Oliver being sick: I took about an hour to myself on Monday, since I had to go to Kaiser after dropping James off at dialysis to pick up some meds for him, to go to Barnes & Noble to cheer up. It didn't work. I was totally miserable walking around, even though I did buy Leather and Lark and Ashley Poston's new book. If going to a bookstore can't cheer me up, how will I manage?

Something very odd happened Monday night. We buy snack cakes for desserts; you know, Hostess cupcakes, things like that. We had a box of Ding Dongs which we had already eaten two of the cakes. When I opened one for dessert and took a small bite of it, a terrible chemical smell came out of the cake, like...I don't know, like some kind of floor or counter cleaner. I opened the cake I was about to give to James and it had the same smell! I threw them both away, and Tuesday I was terribly sick, sleepy and nauseated and burping all day, so I just threw the rest of the box away, too. So glad I didn't ignore the smell and eat the whole thing, or let James eat it.

We had leftover turkey and rice for supper on Friday, and a good thing because dialysis caused us to be ready just in time for Opening Ceremonies of the Olympics. Bon spectacle on the Seine for sure, although some stuff was just bizarre, like the decapitated Marie Antoinette projections. We were surprised at all the furor about "the Last Supper" because we watched the whole thing and never interpreted what happened in that manner. Later they explained this was a tribute to pagan gods or whatever? Ah, well, they're French after all. (Just kidding.) Anyway, I loved that they rang the bells of Notre Dame for the first time since the fire! Also the wonderful light show from the Eiffel Tower and the fact that the Olympic torch is actually a balloon in honor of the Montgolfier brothers! Enjoyed the fact that the countries' teams got to ride in boats down the Seine as well, but felt bad for everyone being drenched with rain.

I had no idea why Snoop Dogg was getting all this attention and Lady Gaga performing was okay, but Celine Dion singing was quite beautiful. I looked up the "stiff person" disease that she has and the symptoms sound gruesome, and even loud sounds can trigger an attack. I hope she was okay after the performance.

Saturday James got his new glasses. Finally! Costco was a mess to navigate on a Saturday.

I don't see any improvement in poor Oliver. He's asleep most of the time although he has been eating, and I've been vaporizing him every day. Sometimes I can get him to eat fruit or some oatmeal, but he is letting me cuddle him more and more, not because, I think, that he is getting used to me and likes it, but because he's just too worn out to fight back.

Labels: birds, books, budgies, food, Olympics, shopping, sickness

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. . . . . noted and logged by Linda at 10:18:00 PM

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We are getting into the rhythm of the three-times-a-week dialysis, but still had a horrendous Wednesday.

It looks like Monday will be my day at Kroger, to pick up milk (alas, at a higher price than the Mableton Kroger) and yogurt, and burritos if needed (and of course I could always survey the manager's special meats). Maybe I can do Publix on Wednesdays.

Oliver went back to the vet on Tuesday. She said he's not worse, but not a lot better, but she stopped the medicine and asked me to just keep him warm and vaporized and encourage him to eat, and she'd see him in two weeks.

James has been doing well with José, the physical therapist. He is giving James exercises to take down the back pain and also a way of walking that helps his diaphragm expand properly. We also have Shanté (the occupational therapist), who comes once a week and gives him a different set of exercises.

Thursday we couldn't rest from our long, long Wednesday because we had to go to Costco in the afternoon to order James' new glasses. We also tried out the "new" gas station: they added four pumps so that now there are twelve—that Costco gas is always packed—and they also have lights on the uprights to tell you which pumps are occupied.

Wednesday was the real bear: James had another 7 a.m. chair so we could go to his afternoon eye appointment that it took us three months to get. Up at six again with only three hours sleep; after I dropped him off, I figured, hey, who's going to be at Publix at this hour? and I was right, only two other people were there. Also noticed that milk is cheaper now at Publix; who would have thought it? So I got that done, except they didn't have enough Smart Balance to restock the fridge (I took care of that on Friday after I dropped him off; drove down to the Publix across from Sprouts to get three more tubs—now it should last until the next time Smart Balance is on twofer).

Anyway, when I picked him up at eleven (never having gotten any more sleep) we had to go directly to Kaiser Cumberland for James' followup appointment (from Urgent Care on the 13th). The appointment was at noon, but we didn't see the doctor until 1:30, and it was so cold on the front side of the building that even I was cold, and James, with his anemia, was absolutely freezing. The nurse didn't have a blanket, but she brought him a sheet that we doubled up as a shawl.

When we arrived, I'd had half a stale Poptart and a slice of toast with butter to eat. I mentioned this to the nurse this--I'm terrible with remembering names and I don't remember hers, but she's always so nice--and she gave me her homemade fruit cup! She said I needed it more than she did. She makes them on weekends so she has them for the week: grapes, strawberries, and pineapple. (I shared the pineapple with James.) Very thankful for small kindnesses.

And then we had to hotfoot it up to Kaiser Townpark for the eye exam. Pushing James in the rollator at TownPark is So Much Fun. Not. By the time we got home, James could barely make it up the four steps to the foyer and the chair lift. Canned soup was all we could manage for supper.

Saturday we slept in and, after walking the dog, all I did was watch the ChargeTV marathon of Law & Order: Criminal Intent, and I fell asleep several times during that!

Sunday we got to do the one fun thing for the week: Juanita's birthday party at Longhorn. Unfortunately they're building an Olive Garden next door, and half the parking lot is gone, so I had to drop James and the rollator off and go park the car elsewhere. It was hot and sticky, so no love. But seeing everyone was so great!

Labels: birds, friends, health, pets, shopping, sickness

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. . . . . noted and logged by Linda at 11:28:00 PM

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This has been an eventful week in many aspects.

Our own particular hell started on Monday evening. At two-thirty, I dropped James off at DaVita, bought a couple of things at Kroger, and went home, sorted meds for the week, cleaned the master bathroom, chatted with a friend, edited a story. At six fifteen I went to pick up James. Out we tooled to the truck. James got into the passenger seat. I rolled the chair on the lift, it started to lift, got about two inches high, and then it dropped back to the ground with a bang.

You guessed it, guys. The lift broke again. This time the hydrolic pole that lifts and lowers the platform broke.

At this point we were stranded, because, while the chair has the range to trundle home, the truck can't get anywhere dragging the ramp behind it. I called AAA, to see if they could get me a rope, because I could (barely) hold the ramp closed and lift it up, and if I could tie it together, the truck could get home. But when I tried to tie it up with a bungie cord, it snapped in half. AAA says they couldn't get me a rope; they could give me a tow, which wouldn't work.

Well, God/fate/someone sent Eduardo, who was doing business a few stores down. He had a ratchet strap in his truck, and he lifted and tied the ramp upright with it, and then we had a couple of shorter bungee cords to keep the folded-up base parallel to the lift pole.

Now I started to worry. What if I drove home and it let go? And James would have to trundle the entire two miles home by himself. What if the chair lost power or he had some medical problem? He's only out of the hospital ten days.

Eventually, I called Alice. To make a long story short, she and Aubrey [her daughter] came to the shopping center, and Alice drove home behind me to watch the ramp (it did drop vertically slightly, to the point I couldn't get the truck in the garage due to the curve in the driveway), but we got it home. And Aubrey walked all the way home with James. She found the easiest route via Google Maps, with the least ups and downs, and after about an hour Alice and I saw them approaching on Life 360 and we walked out to the corner to meet the wayfarers.

There's that saying "God never gives you more than you can handle." God apparently thinks I'm Supergirl or Wonder Woman. If I'm not at the end of my rope, I can see it from here.

For the rest of the week I had to trundle James around in a wheelchair, and later in his big rollator, which I didn't realize that I could push if James tucked his legs up (the rollator is actually easier to maneuver than the big wheelchairs). The rollator is heavy, though, and my back is really feeling it.

Wednesday was really a nightmare: because James had a followup appointment with Dr. Mobley in the afternoon from his sojourn to Urgent Care earlier, we had to be at DaVita at seven in the morning, the only seat they had. We both had four hours sleep. I went to Kroger, then went home to get more sleep, but it doesn't seem to be helping. Friday I did a Lidl/Publix run and made chicken cacciatore for supper.

Tuesday Oliver went back to the vet. He scolded Dr. Bostick the entire time he was in the weighing box. She took him off the medicines! But she wants me to continue vaporizing him and keeping his cage enclosed so he's warmer. I wrapped three sides of his cage in Glad Press'n'Seal so he gets more light; maybe it will perk him up. He looks so sad. I am wondering if he's suffered neurological damage from being sick for so long, because when he's not eating or sleeping, he just sort of sits, sometimes with his head down, looking sad. And she says to make him eat.

Thursday we took the truck to Mobility Works. This new part will cost $1700. Now we're nearly up to the price of a completely new chair lift. Plus Bruno [the manufacturer] apparently can't believe the lift is breaking down like this. They keep asking if the chair isn't heavier than the lift can tolerate. Well, dudes, when the idiot bashed in the previous lift at the Kaiser Glenlake office, we sent the specs on the chair to you, and this is the lift you sent. This is on you, not on Mobility Works or us. The manual says the chair weighs 326 pounds, the scale at DaVita says it's 317, and that's what we told you.

Anyway, someone finally called to make an appointment for a followup about the fistula and why dialysis doesn't want to use it. It would be with another doctor. It also wouldn't be until August 20 and I was very disappointed. I logged on to Kaiser to put all of James' appointments on his phone, and only then realized the fistula appointment was at the Southwood office. No. Just no. That's an hour's drive on a treacherous stretch of highway and every time we have had to go down there we have had our hearts in our mouths because the traffic there is so bad. It's either bumper-to-bumper or racing at 90 mph with cars darting in and out of traffic. There's a reason we quit driving to Warner Robins although we miss seeing Maggie and Clay.

I sent Dr. Austin a terse note that said neither James nor I were in fit health to make a trip to Southwood, and wanted to know why Glenlake was not an option. I also asked straight out for the results of the two ultrasounds of the fistula we had at St. Joe's. (Someone did eventually get back to us with an appointment for Glenlake, and, as a positive note, it's sooner, on August 2. We got no report about the fistula.)

Saturday should have been a fun day, but after we went to Hair Day—James was so tottery that Ron left the driveway clear and we came in through the garage; it was a busy day for Sheri, too, as she had a bumper crop of haircuts—we had to go up to Urgent Care, because since James got out of the hospital, due to the Foley catheter he wore all week, he had another UTI. It wasn't crowded and we weren't there all that long. This time the doctor is trying him on two doses of the powdered stuff, Fosfomax. I don't hold out much hope for it to work, as it's only two doses, and James has had it before, three doses, and it didn't work.

This all paled to what happened in Butler, Pennsylvania, at a rally for Donald Trump. Despite all the Secret Service presence, a shooter was able to get on the roof of a nearby building. Luckily Trump turned his head and all they knicked was his ear, but a man who was at the rally threw himself over his family and was killed. The shooter was some kid—twenty is a kid to me!—who had researched killing both Trump and Joe Biden. Of course now this has made a martyr out of Trump.

Labels: birds, events, friends, health, pets, repairs, sickness

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. . . . . noted and logged by Linda at 10:44:00 PM

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James had his first week of dialysis.

It was ultimately frustrating, at least for me; as I ended up in Kroger every single time (DaVita and Kroger are in the same shopping center, about two miles from our house) and if there's anything I loathe, it's grocery shopping. The temperature was sizzling. And because the shopping center is popular, it's a pain in the neck to find parking. But I picked this location because it's close to the house and, if there was some type of emergency with the cars, James could actually ride the power chair to dialysis and back. Friday night was kind of the last straw; I thought my third visit to Kroger was my last, and then the roll of Glad Press'n'Seal (which enables James to take a shower with the permacath in him until they get this stupid fistula business worked out) fell into the toilet.

Tuesday I took Oliver back to Dr. Bostick. She says he is better, but not much, and she prescribed another medicine. As you can imagine, he hates that. It's an anti-inflammatory. And she wants me to have the vaporizer on for him.

James' in house physiotherapy coach came this week: José, a young man originally from Puerto Rico. He has James doing a walk back and forth holding something in his teeth; when he breathes only through his nose it expands his diaphragm and circulates more blood to his lower extremities. We also have an occupational therapist, Shanté, who came on Independence Day.

We had a quiet Fourth. I found the Bristol, Rhode Island, parade online again and had that on, and then we watched 1776 as usual, and then in the evening watched the Boston Pops concert and fireworks from the Esplanade on the Charles River via Bloomberg television. I noticed that the people running the cameras finally got the message and there were no shots of the crowds working the fireworks this year, just the fireworks! It was a good night, not a lot of smoke accumulation.

James finally got to do something fun: I took him to his club meeting on Saturday, then went by Sam's Club to get Press'n'Seal (good deal, two huge rolls). James' meeting ended early when one of the guys passed out from the heat inside the Union Hall—the air conditioning wasn't working—so we picked up some gasoline at Sam's Club. On the way home we got stuck in a gullywasher of a rainstorm, to the point that my clothes were soaked (and still wet on Sunday morning!). By then I was so exhausted all we had for supper was soup.

Labels: events, health, holidays, Independence Day, shopping, sickness, television

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. . . . . noted and logged by Linda at 11:56:00 PM

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